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Multiple Sclerosis | Sclérose en plaques

Started by darlcam at 02-04-2010 12:55 PM. Topic has 3 replies.

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   02-10-2010, 11:50 AM
darlcam is not online. Last active: 8/31/2009 1:47:40 PM darlcam



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Re: pain is back
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Thanks to you both for your words of support. I have lived for quite some time with MS and quite a few people I know don't even know I have MS. I have been very fortunate to lead a very active life and certain bumps are turning in to bigger mountains to climb.
Doug, you are so correct about the tunnel, that is perfect! I guess the big fear is never knowing how each day will be and trying to keep up with your normal schedule.

Thanks again Darlene
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   02-05-2010, 12:49 PM
Doug_MacAulay is not online. Last active: 7/7/2010 7:54:24 PM Doug_MacAulay



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Re: pain is back
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Hey Darlene,

I'd like to second what Cindy said and add that you have every right to complain.  You have MS, you're in pain; don't beat yourself up about expressing how you are feeling.  You are being honest with yourself and others you tell when you let us in. What you are going through is pushing the limits of what you can tolerate.  That's importent for other people to know.  It's helps them understand better why you are the way you are today.  No one is going to blame you for it.  If you are in a bad mood, tell people.  I think most people are more forgiving than we sometimes imagine they are.  If you are in pain and it's affecting your life, tell people.  Maybe they can help you get through your day.  You don't have to feel bad for complaining at all as you are well within ligimate boundry.  You have what you have and are feeling what you are feeling.

That being said, generally speaking, one should feel better after a treament and you are saying that isn't the case.  That is terrible news.  I wish you were feeling better and not experiencing any pain.  I can tell you are well experienced in living with MS from what you are saying.  And I know you are in the dark tunnel now, where you can't see the beginning nor the end light of the dark pathway of symptoms.  And I know you know yourself that nothing is perminent.  Including the good times not just the bad.  It's hard to find comfort when our symptoms are cronic and nothing seems to help. 

But you can take comfort that you are doing things right: expressing yourself, taking care of yourself, you know how to handle your symptoms, meeting with your doctors, etc...  Perhaps you just need a little encouragement today and some affirmation that you are doing a good job!  Some of the bravest people I know are MS patients.  Knowing there is no cure and what this disease can do, I find it amazing that so many of us find it inside to keep living our lives and never giving up that hope.  It's inspirational and uplifting to know people like you are out there!

I hope for you an end, so very soon, to the way you are feeling and suffering !  Until then, keep doing what you are doing.  You are doing great!!

All the best,

Doug.


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   02-04-2010, 8:59 PM
cindy27 is not online. Last active: 10/7/2009 3:32:08 PM cindy27

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Re: pain is back
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Hi Darlene,

I don't pretend to know what you're going through, as I'm fairly new to this diagnosis and community.  I just read your post though, and my first reaction was to touch base with you.  I do know that there are a lot of supportive people here, and there will be someone able to relate to your story.

After almost 20 years, I'm sure you've been through other times that seemed pretty dark (it's all relative).  The only thing I know for sure about MS is that you can't really count on anything staying the same.  If this is a turning point for you, you will get through it with the support of your friends and family--as well as this community.

Remember, you are never really alone while there are others who share this "ride" with you.

Take care of yourself,

Cindy


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   02-04-2010, 12:55 PM
darlcam is not online. Last active: 8/31/2009 1:47:40 PM darlcam



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pain is back
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Help! I now have been just over 3 wks off the prednisone and my pain is coming right back to the point of not managing it. I am at the max. for gabapentin and taking amitriptyline in the evenings. I hate to think of going back on the prednisone. I am reducing my work hours and taking additional rest time. I am coming in at this as a person who has got along very well for the past almost 20 yrs, remained active and been able to work out of the home. Is this another turning point and will the pain stay like this forever??
I know I should not complain there are people suffering more than myself.

I will be seeing my neuro in a couple of months and family Dr. next wk.
Thanks for your input.

Darlene




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