HI there, well first you would have to go to one of the clincs that have been set up specifically for this testing. I know there is one in Vancouver area, and one in/near Buffalo NY, and I understand that there is a new one that has opened in Saskatoon, Sask.  If  you can get into one of these clinics, they will do an ultersound test on you to determine if you do in fact have restricted veins....at the moment they are building a data base, and then I assume after a length of time - they might begin some trail treatments here out of a selected group to study results etc

Gary

HI there, well first you would have to go to one of the clincs that have been set up specifically for this testing. I know there is one in Vancouver area, and one in/near Buffalo NY, and I understand that there is a new one that has opened in Saskatoon, Sask.  If  you can get into one of these clinics, they will do an ultersound test on you to determine if you do in fact have restricted veins....at the moment they are building a data base, and then I assume after a length of time - they might begin some trail treatments here out of a selected group to study results etc

Gary

Hi there, again, thanks for the information, I registered!!!

Gary

Good for you mIchael for getting yourself registered....too bad it is such a waiting list, but maybe the wait time will improve in time.

I know what you are saying about the doctors, my GP actually use to get mad at me, when I showed up in his office, throwing his hands up in his office saying to me, I dont know what to do with you, before my MS dx...He kept asking me to smarten up as everthing I was experiencing was in my head...

Then I came to him with my MS dx, and said nothing, but watched the expression on his face. Now when I go to see him, he just cant do enough for me, talk about kissing one's a...

Guess that is how it goes

Gary

Hi there Cindy and thanks for the link.....very interesting to say the least.  It does make one wonder if the research into CCSVI is really going to expose something here - in a totally different direction than what the MS societies in Canada and the US are suggesting, being that MS is directly related to the immune system.  I really do beleive that the speed of this research is going to be influenced by the degree to which this society supports such research in the present day and in the future to come.  I have supported the MS society of Canada in the past by volunteering at their bike tours, etc.....but I am sitting now wondering, out of the money that they do get this year from across the county during their annual fund raising events - how much of it will go towards CCSVI research.  I am thinking at this time, that we - those with MS, should be pushing the MS societies to pump their funds towards this research, to expediate the matter....at least for awhile anyways.

I did read an article that was posted here very recently about two canadians who went to Poland to get the actual procedure - and the results seemed to be very positive.  In this article, it did indicate that various countries are already on board with not only the testing, but the actual procedure, which include Italy, Poland, Australia, and India.  I guess the procedure itselft is running around 10,000 dollars at the moment, none of which is covered by the Canadian Health Care systems, as it will not cover such procedures due to the fact that here in Canada it is deemed to be still in the experimental stage.

I am not suggesting at this time that this is it - the wonder treatment that is going to fix us all, but there has been enough research, testing and procedures done to date that are indicating success, and with that, we cannot just turn a blind eye to this potential benefit lurking in the dark - just waiting to be exposed.....

I for one am not jumping up and down with excitment - not just yet - but at the same time - there has been enough going on so far that has generated much interest.  I am not sure if you all just got some reading material from Shared Solutions, who have gone thru a bit of a name change, and within the documents - I did read a sense of urgency for all of us to continue our treatment, be it Copaxone or the other treatments available, until all has been done to verify or concluded that this procedure, or for that matter, oral treatments have been proven to provide similar results as with Copaxone etc.... but the degree if urgency in their publications did make me wonder - why...in one portion of the printed material, it even suggested that the procedure was risky, and I have to say this was the first time I have read this anywhere...

You are right Cindy, these are fascinating times for us all, but I do hope that researchers stay in high gear on this....

Have a nice day

Gary

Gary

Hi there, has anyone heard any more on this...the whole subject has rather died off.....has anyone as of late been tested, has anyone recieved treatment, been to Italy?

Thanks, Gary